Accessing data directly from CLS

We make all our cohort study data available via the public data repositories wherever possible. However, access to certain data is governed internally by the CLS Data Access Committee (CLS DAC), either because:

• the data are not yet available via the UK Data Service or other repositories, or
• the data access is subject to specialised access arrangements, such as paradata, genetic data and biological samples.

To request data directly from CLS, you will need to apply directly to the CLS DAC.

The CLS DAC manages and evaluates requests according to the data sharing principles and approval criteria set out on the CLS Data Access Framework.

The functioning of the CLS DAC is described in the CLS DAC Terms of Reference.

The CLS DAC welcomes applications to access the following types of data:

• Existing research data not deposited at a public repository due to their sensitive or disclosive nature, or because they have not been prepared sufficiently for deposit.
• Paradata (i.e. data about the data collection process), created primarily for administrative purposes and not routinely released for research use.
• Genetic data linked to survey data: when combined with survey data, CLS genetic data are subject to a separate access arrangement that requires the creation of a bespoke survey dataset identified by a specific ID. See more details here.
• Biological samples: CLS has a resource of depletable biological samples, including DNA, stored primarily at the University of Bristol. Access can be requested for genotyping or generation of new analytes. See more details here.

You can view a list of all approved data applications at the bottom of the CLS data webpage.

To apply for any of the above, please download the document below and read carefully the CLS DAC data access guidelines before submitting your completed application form to clsdata@ucl.ac.uk.

• CLS data access guidelines and application form
• NCDS data dictionary for genetic sharing applications
• BCS70 data dictionary for genetic sharing applications
• Next Steps data dictionary for genetic sharing applications
• MCS data dictionary for genetic sharing applications

Please allow plenty of time for us to process your request. We suggest you submit your application at least three months before you plan to start your research.

In addition to specific data requests listed above, the CLS DAC also welcomes proposals to:

• generate new linked data, such as new geographical data
• conduct data enhancements, such as new data collections or restoration of non-digitised legacy data.

Find more information here:  Proposing data linkages and enhancements.

Deadlines for applications

The CLS DAC meet monthly (except during the summer break) to assess new and amended applications.

Please note all dates for 2024 have now passed. The earliest date to submit is in January 2025.

The deadlines for sending us any forms for review are:

2025

• Wednesday 22 January
• Thursday 18 February
• Thursday 27 March
• Wednesday 16 April
• Tuesday 17 May
• Tuesday 24 June

Summer break

• Tuesday 26 August
• Tuesday 30 September
• Tuesday 28 October