The Early Life Cohort Feasibility Study (ELC-FS) is a two-year project starting in April 2021, that will test the feasibility of a new UK-wide birth cohort study. The study will recruit several thousand new babies, collecting information about their families and their development.
The feasibility study will be evaluated in early 2023, and if successful, commissioning of a new, larger main study is anticipated in 2023.
A major part of the feasibility study development is a series of consultations to help shape the content and scientific direction of the project.
|10 Aug 2021 - 17 Sept 2021||Consultation on first draft of questionnaire and non-questionnaire measures|
|20 Aug 2021 - 10 Sept 2021||National Children's Bureau stakeholder engagement survey|
|16 Jun 2021 - 5 Jul 2021||Survey on the content and design of an Early Life Cohort Feasibility study for the UK|
|17 Jun 2021||Early Life Cohort Feasibility Study Stakeholder Engagement Event|
|10 Jun 2021||Consultation on the content and design of an Early Life Cohort Feasibility study for the UK|
In August and September we shared a new consultation on the first draft questionnaire for the Early Life Cohort Feasibility Study. You can access the first draft of the primary informant questionnaire (a supplementary appendix lists out measures that were de-prioritised due to time constraints), and an outline of the non-questionnaire measures, and outline of the topics to be included in the additional informant interview. When we asked for suggestions for additional content, we stated that it should be counterbalanced by suggestions for cuts to the questionnaire elsewhere.
View and / or download the Early Life Cohort Feasibility Study Primary Informant Questionnaire for Consultation.
View and / or download the Early Life Cohort Feasibility Study Primary Informant Questionnaire for Consultation Appendix 1: Topics and questions that could not be included in current draft due to space constraints.
View and / or download the Early Life Cohort Feasibility Study Non-questionnaire measures, and additional informant interview topics.
National Children’s Bureau stakeholder engagement survey, 20 August 2021 to 10 September 2021
This survey aimed to capture policy, research and practitioner views on:
133 individuals responded. Findings from this survey will be published in due course.
Survey on the content and design of an Early Life Cohort Feasibility study for the UK, 16 June 2021 to 5 July 2021
This online consultation survey was an opportunity for stakeholders from academia, government and third sector, who will be future users of the study to answer questions on design of the feasibility study and to make specific suggestions for content. Over 120 submissions were made. Read more about the survey, and find our first draft report of the survey findings here.
Early Life Cohort Feasibility Study Stakeholder Engagement Event, 17 June 2021
The National Children’s Bureau (NCB) is supporting UCL to undertake the feasibility study through a series of activities including a stakeholder event, bringing together stakeholders from the policy and practice communities to discuss evidence needs and to suggestions for the design and content of the feasibility study. The session was attended by over 50 stakeholders with the aim to help ensure that the study is informed by the evidence needs of stakeholders. Read more about the session in the consultation report here.
Consultation on the content and design of an Early Life Cohort Feasibility study for the UK, 10 June 2021
On 10 June 2021 CLS hosted a consultation on the content and design of the Early Life Cohort Feasibility Study. This online event was attended by over 170 researchers, data users and policymakers. In the morning attendees contributed to up to 2 of 7 scientific parallel sessions on the study’s scientific themes. In the afternoon participants attended parallel sessions focusing on creating an inclusive cohort. Read more about the event and the draft consultation report here.